Opting out of MyHealthRecord scheme by 14th November

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Petebass
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Re: Opting out of MyHealthRecord scheme by 15th October

Post by Petebass » 04 Sep 2018, 17:32

slowlearner wrote:
04 Sep 2018, 15:52
One of my kids was born with a truckload of health issues. Her medical file is literally as thick as the yellow pages. During her first year of life she had more than twenty different specialists. Taking her to a regular GP is like turning up to a Toyota dealership with a vintage Ferrari. The blood drains from their faces and they don't even know how to open the bonnet. Our old family doctor looked panicked every time we took her there. Amusing to watch, but not very helpful. So you can imagine why I think it's a good idea that any hospital or doctor in Australia could open her file if anything went wrong.

I appreciate there could be issues with privacy, but then if ASIO wants to know anything about me I'm sure they could find it in 15 seconds. Just by being on this forum, I've no doubt donated enough free personal data to get me into trouble. So weighing up the risks, I'm with Petebass on this one. I think it's worth it.
When my mum was still alive, she jumped on a plane and flew from Sydney to Hervey Bay to visit. While here, we had to rush her to hospital in an ambulance with no idea what was wrong. All her doctors and specialists were interstate, and the ER doctors had a hell of a time contacting any of them. They had absolutely no idea what they were dealing with, but were under pressure to save a life. Hours later and on the brink of death, bloods came back with elevated potassium levels. I had mum's big bag of medications with me, so we were able to go through them looking for a possible culprit, but nothing in there contained potassium. All the while, mum was slipping away before our eyes. Luckily they were able to somehow counteract the potassium while guessing at what the other medications were for and taking pot luck they wouldn't be somehow exacerbating an existing condition.

At a moment like that, what's more important - possible privacy problems, or the reality of imminent death?
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slowlearner
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Re: Opting out of MyHealthRecord scheme by 15th October

Post by slowlearner » 04 Sep 2018, 17:49

^ Precisely.

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packrat
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Re: Opting out of MyHealthRecord scheme by 15th October

Post by packrat » 04 Sep 2018, 18:33

When people I know on lots of medications travel, the tend to take records of those medications with them. There are probably some upsides to the records system, but in the current form with the government lying about its access controls, opt out and have them fix it.

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BassLine
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Re: Opting out of MyHealthRecord scheme by 15th October

Post by BassLine » 04 Sep 2018, 23:01

Andrew92 wrote:
04 Sep 2018, 13:02
just an anecdote.

I used to work for Department of Health (7 years) and currently work for a company in perth whos health software is Myhealth record compatible.

Delete it ASAP. you have no idea just how its being used. I dont want to sound like Alex Jones but delete it. It takes a few minutes, you'll be glad you did.
Thanks for that input.

I can see it helping a small percentage of the population (who could Opt In to the system). Outside of those people, I see many issues as mentioned above.
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cleary
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Re: Opting out of MyHealthRecord scheme by 15th October

Post by cleary » 05 Sep 2018, 13:46

slowlearner wrote:
04 Sep 2018, 15:52
One of my kids was born with a truckload of health issues. Her medical file is literally as thick as the yellow pages. During her first year of life she had more than twenty different specialists. Taking her to a regular GP is like turning up to a Toyota dealership with a vintage Ferrari. The blood drains from their faces and they don't even know how to open the bonnet. Our old family doctor looked panicked every time we took her there. Amusing to watch, but not very helpful. So you can imagine why I think it's a good idea that any hospital or doctor in Australia could open her file if anything went wrong.

I appreciate there could be issues with privacy, but then if ASIO wants to know anything about me I'm sure they could find it in 15 seconds. Just by being on this forum, I've no doubt donated enough free personal data to get me into trouble. So weighing up the risks, I'm with Petebass on this one. I think it's worth it.
To counter this, I know someone who's wife is in the same boat - she's recently started looking to re-enter the workforce and is concerned that the unfettered access to the myhealth record can put her employment prospects at risk.
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slowlearner
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Re: Opting out of MyHealthRecord scheme by 15th October

Post by slowlearner » 05 Sep 2018, 13:58

Hold on just a second, but isn't why we have an anti-discrimination authority?
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narcdor
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Re: Opting out of MyHealthRecord scheme by 15th October

Post by narcdor » 05 Sep 2018, 14:04

Proving discrimination in hiring practices is quite difficult.
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packrat
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Re: Opting out of MyHealthRecord scheme by 15th October

Post by packrat » 05 Sep 2018, 14:58

And we also have a government who acts to wind back protections under said anti-discrimination laws.

MrChameleon
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Re: Opting out of MyHealthRecord scheme by 15th October

Post by MrChameleon » 07 Sep 2018, 11:18

Dumped documents pulled from Victorian Parliament website after privacy breaches

http://www.abc.net.au/news/2018-09-07/d ... h/10212520
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packrat
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Re: Opting out of MyHealthRecord scheme by 15th October

Post by packrat » 13 Nov 2018, 00:11

For folks still on the fence, the updated deadline to do this is this coming Thursday (the 14th) and it looks as if the government will not extend the opt-out period until the unscheduled future date when they will pass any of the laws that fix holes in the privacy and access things. There are also reports of system issues, so don't leave it until the very last day.

In other news, the chief privacy officer for the scheme just quit, citing interference.

We_r_Me
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Re: Opting out of MyHealthRecord scheme by 15th October

Post by We_r_Me » 13 Nov 2018, 06:18

packrat wrote:
13 Nov 2018, 00:11

In other news, the chief privacy officer for the scheme just quit, citing interference.
Russians again? :lol:

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Re: Opting out of MyHealthRecord scheme by 15th October

Post by packrat » 13 Nov 2018, 06:28

No. Local government.

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veebass
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Re: Opting out of MyHealthRecord scheme by 14th November

Post by veebass » 14 Nov 2018, 14:49

Senate has extended the opt out period just now.

https://www.9news.com.au/2018/11/14/13/ ... -extension
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veebass
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Re: Opting out of MyHealthRecord scheme by 14th November

Post by veebass » 18 Nov 2018, 05:47

Some interesting reading.
Seems there were some undisclosed potential conflict of interests at Board level involved in the development of my MyHealth.

Serco again.

https://www.smh.com.au/healthcare/hidde ... p_Q05cVPYM
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